ALS caregiver resources

Essential information for the people caring for someone with ALS

Practical techniques, honest equipment guidance, and financial resources, written and reviewed by a licensed occupational therapist who has been where you are.

Illustration of a caregiver supporting a person

Most requested information

Go straight to the topic you need right now.

Daily care

Transfers

Moving safely between bed, chair, and bathroom

Daily care

Nutrition & feeding

Swallowing changes, diet texture, feeding tubes

Equipment

Assistive devices

What to buy, when, and what to skip

Daily care

Speech & communication

Voice banking, boards, and eye-gaze devices

Money

Financial resources

SSDI, Medicare, grants, and equipment coverage

Support

Support network

Directories, respite care, and community

Guides

Caregiving guides

Common needs, explained start to finish

Planning

End of life planning

Advance directives, hospice, and hard conversations

Three ways we help

Instructional videos

Transfer techniques and assistive technology, demonstrated step by step so you can watch before you try.

Browse the video library →

Guides

Plain-language guides that explore the common needs in caregiving, one action at a time.

Read a sample guide →

Resources

Connections to financial, informational, and practical resources: government programs, non-profits, and equipment funds.

Find financial help →

Why this site exists

The heartbeat of KnowALS: Mema’s story

My path into occupational therapy and to founding KnowALS was profoundly influenced by my grandmother, Mema, and her diagnosis with ALS. The challenges our family faced while caring for her left an indelible mark, and steered everything this site has become.

Makayla with her grandmother Mema

Navigating barriers to care

Comprehensive care isn’t feasible for everyone. Geographic isolation, financial constraints, and limited local resources keep many families from the support they need. KnowALS exists to close that gap: accessible, practical information and tools for people with ALS and the networks that support them, wherever they are.